Wednesday, December 18, 2019

Home for Christmas



Yes. It has been two and a half years since the last post... Things have been amazing! So many milestones met, and yet we have been so busy that I haven't taken the time to celebrate them with a post. Seriously, everything has been looking up. This blog, just like Ayden's CarePage from over a decade ago(yes, I did say a decade), was created to keep people informed. It alleviates the stress of individual messages to the masses. It also allows people who don't know us well or are just curious to learn about our son. Truth is I still do not have nice short answers to questions like "What does he have?" or "What is wrong with him?" My answer is always messy and longer than anyone really wants to hear.

So fast forward to tonight. I am sitting in PICU with Ayden. Our goal - Make it home by Christmas! We haven't shared much, but the word is out and we honestly need some prayer warriors, and the more the merrier.
Last Friday, Ayden woke up screaming in pain. We took him to the ER where he sat for a few hours and went home with the diagnosis of constipation. Yep! There are some of you that will laugh about the old family story that goes with that one. Anyways, despite leaving the ER as uncomfortable and screaming as when we arrived, we took him home. At the time an elevated white blood count was noted, but the doctor said it was not worth the time to chase down the source of that.
 Nothing changed, Ayden cried "No more large" and tried to sleep in between screaming.
 On Saturday, we returned to the ER and they admitted him for observation due to his chest x-ray. We have been at Parkview every since. Fortunately, our team is in charge and they have been looking at everything. He just is not himself at all, and truly is in pain. On Monday, it was decided that his left lung was too full not to do more than antibiotics. Tonight he had a VATS procedure to drain his lung and get a good look at what was inside. Samples were taken for cultures and further examination.
For the next few days, we could use some prayers for answers and strength. Ayden will be in a lot of pain for a bit, but our hope is to talk discharge within 3-5 days. They placed a new PICC line yesterday, so we can hopefully just come home with IV meds like we have done before. We know Bubba heals best at home, our team knows that too.
My hope is our next post is of an amazing little guy opening his gifts on Christmas morning.

We are thankful for all the thoughts and prayers,
The Hoffmans

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