A Pink Shirt, Spongebob, and Spring Break

Ever have one of those days? Today was it for me. even though it has only been about a week since the last post I just need to share a Bubba story. You know it is funny I am sure every special needs parents has had the conversation with others or at least in their own mind. 

"What if ..." 

Sometimes I think it is so easy to get wrapped up in the disabilities that you forget to share who your child is. Just a few weeks ago the conversation happened and it stuck with me. These past two weeks have been full of fits, nothing like we have seen in the past, but more defiance than normal. He has started to backtalk and argue with this little look. The best example is the bus, he has really been resisting getting up, taking his meds, and even getting on the bus.

 The one morning when I said, "Let's go see Deb and Vicky". Ayden replied with, "No , I ride in Daddy's truck!" That is when things cleared up pretty quickly for me.  Bubba is stubborn, ornery, and smart; He is also growing up and going through some of the same things his sister did. He thinks he is a big boy and wants to argue over why he can't control more of his world. Something natural for kids, but yet I just didn't think about it. The battle over the bus has been a pain, and we have had some pretty crazy mornings. Last night I decided to change that with one little purchase. What was it? A pink shirt. Yep. I showed it to Bubba first thing this morning and he was up dressed and ready to go before the bus even pulled in the drive. He was so proud of it he hopped on the bus happy and excited. 

Is it that simple? Yes. Bub used to try to pick Nessa's clothes when they shared a room. We always said "No". He sees pink as the color of rebellion and since he still looks pretty handsome in it, it is just fine.  The wonderful morning was quite a blessing for me and started my day off right. Today was rough, but I found myself smiling about the little pink shirt. Well, that no so little pink shirt and the smile that wore it all day. When he stepped off the bus he was so happy and ready to watch some Spongebob. He plopped right on the couch, and the best part was he said "sit here" tapping the couch next to him.  We cuddled and then he assumed his Spring Break position (below).  It is crazy to think in one instance he is growing up, and in another he is still my baby boy that can make me smile and erase the pain of a bad day.  Gotta Love my Bubba! :)

Growing Boy!

 Tonight at supper we were eating fish sticks and Bub wanted more so he just reached and said "eh". I stopped him and said use your words please. 

His reply, "(burp) Can..(burp) I..(burp)..have..(burp)..more..(burps) please!"

Yep! That is our boy...

Needless to say he is a pretty happy to be all boy and growing up so fast. He loves shooting hoops, cars, and anything that rolls or bounces. Today was the first day that he has been outside in quite awhile. He loved shooting hoops and getting licked all over by Bear. He had a blast, but was ready for bed right after supper. 

That is it...That is our story right now. Ayden is thriving, we are all happy, and we are just enjoying life.  I know it has been months since our last update and for that I apologize. I always worry about posting anytime Bub is having seizures, so I just haven't sat down to do it. Bub did start with some break through seizures a few months ago, but I feel like we have an answer now. Our hope is the breakthrough episodes we have recorded over the past few months have just been caused by multiple ear infections. We met with the E.N.T. yesterday and planned a spring break appointment for yet another set of tubes. On the brightside, since his last rounds of shots his ears have cleared up and he is feeling better. Hopefully, this minor procedure will keep him stay healthy and eliminate the breakthrough episodes.  We go back to Wisconsin for a follow up soon, but we don't expect anything new except a warm hello and conversation. Ayden is doing well, growing up, and enjoying life. Thank you for all for keeping our Bub in your thoughts and prayers. We are very glad to be so blessed with so many people who love our Bubba.