Monday, June 19, 2023

He Keeps Us On Our Toes

When Nessa and I came home from church yesterday we found out that Bub decided to make Fathers Day extra special for his dad. Poor Justin had to clean up some big messes. According to Ayden George, "My brain hurts." He followed up that statement with some vomiting mid breakfast and spent most of the day just resting. Around 6 PM he started round 2, but each time he seemed to feel better and perk up a bit afterwards. No fever, had me thinking about his shunt so we headed to Parkview. Justin enjoys a good Father's Day at the hospital, certainly not his first. The ER worried me at first because the gal who checked us in said, " I am not familiar with a vp shunt, so like what do you need?"  Fortunately, we were blessed with both a great nurse and a fabulous doctor. They found that the left ventricle was enlarged from his previous films. The problem is they can't help beyond that. They would have transported Bub, but I preferred to take him. They wrapped his IV, and after stopping home for luggage we headed towards Milwaukee at midnight. We made it to the ER at Children's by 3:30 AM their time.  We have tested and waited off and on ever since. We are on the Neuro floor which is good but our neurosurgeon is on vacation this week. 
Bub has been Bub, flirting with people, laughing, joking, you know everything that would tell you he is clinically just fine, and makes us look crazy. He hasn't vomited since meds were started at the ER. Today the decision was to let him eat and see how it went. He has been great. 
Are his eyes sparkling? NO. 
Is he grumpy? Yes, off and on.
Is he tired and a bit unstable? Yes, but did I mention the no sleep thing. I think you have to keep that in mind.
They have confirmed the ventricle is larger than his normal, but the neurosurgeon assigned to him said she likes that better even though he is used to a different baseline/normal. He does not have imaging that shouts hydro like he did with his last shunt revision in 2017, so it is not an easy jump into surgery.
Right now we are scheduled for surgery tomorrow, but as long as the vomiting has stopped and he seems "ok" we may just head home and watch him. I like the latter of the two choices because surgery means no swimming for a bit during the hottest days of summer AND it could jeopardize his trip to Camp Riley in a few weeks. On the other hand, it was 11 years ago almost to the day that we were planning for discharge, his shunt failed, and he ended up in a chopper the next day. We will do what is necessary, but I have to be honest and say I prefer "our" surgeon make the call. 
Praise God I was able to drive through the night to Milwaukee without sleep! 
Our prayer focus is for the doctors to find the "right" answers and path for Ayden George. Sis is in Lafayette right now and Justin has to be home for the horses and work, so also pray for both of them as it is hard not to be here with us. 
I hope to post that we made it home by tomorrow evening, but we will see. 
Thank you all for the continued prayers for Bubba George. ❤️🤍❤️