Back Home Again

We completed the VEEG on Monday afternoon. Ayden slept through the night on Sunday and we didn't really see any of the staring episodes so they could not confirm everything. Unlike this fall, Ayden didn't have any "silent seizures" or activity that we could not see. We could have stayed on the EMU another night, but there were no guarantees that he would wake in the night or have a starring spell and Ayden was losing patience fast. Our neurologist was very happy with the results and suggested we try backing off the seizure medication in hopes of stopping the sleepiness and staring. He told us we could be "cautiously optimistic" about all of this.  We'll take it!  We met with his neurosurgeon after a CT this morning and everything looked great with his shunt as well. The only thing both doctors would like to see is Ayden walking. We would love that too! We discussed constraint/restrictive therapy and both of them recommended we discuss it with parents within the hemispherectomy community, but they would support it. So for now we hope to only post little victories as Ayden achieves more of his goals in the coming months. We don't have to return to Cleveland until his 2 year post-op appointments in October. Danessa was so curious about things this trip that we are thinking we may try to take her along then perhaps a celebratory trip to Kalahari on the way back will be in order!

We want to thank everyone for keeping us in your prayers this week. They have certainly been answered and we are so happy to be surrounded by so many thoughtful caring friends.

We're here!

I never thought this process would get easier, but it has. I think Ayden knew where we were going as soon as we left Angola. He was awake and irritable for most of the trip. Once we got past the process of the electrodes being placed though, HE SETTLED DOWN!!! Yes, Bubba actually let every doctor, nurse,and assistant do their thing with little to no fussing! It has been great! He also ate most of his supper and fed himself his desert as you can see in the video. We won't know much until Tuesday, but for now we are here and settled in for this ride.
On another note, we have to say that our world has been full of angels this week.
First, we had a generous card given to us with a kind note. I wish we could thank "we" but the card was unsigned so to whom it may be...Thank you! 
Second, you may have loved the "blizzard" or hated it, but it was a blessing for us as it allowed Justin to join us this week. I truly believe it comforts Bubba as much as me!
Third, we have been searching for Ayden's tray to his wheelchair for awhile now, even this morning Justin was searching everywhere. When we stopped at a rest stop on the toll road, I stopped and thought about the last place we used the tray (our December trip to Cleveland). We were on the opposite side, but the same exit so I asked one of the store employees about it. She called over to the other side and someone knew exactly what we were talking about and brought it right over. We were so glad that not only was it found, but  someone had taken care of it since then and made a special trip over so we could have it on our way to the clinic.

We just can't thank everyone enough for every note, thought, and prayer - Thank you!