We completed the VEEG on Monday afternoon. Ayden slept through the night on Sunday and we didn't really see any of the staring episodes so they could not confirm everything. Unlike this fall, Ayden didn't have any "silent seizures" or activity that we could not see. We could have stayed on the EMU another night, but there were no guarantees that he would wake in the night or have a starring spell and Ayden was losing patience fast. Our neurologist was very happy with the results and suggested we try backing off the seizure medication in hopes of stopping the sleepiness and staring. He told us we could be "cautiously optimistic" about all of this. We'll take it! We met with his neurosurgeon after a CT this morning and everything looked great with his shunt as well. The only thing both doctors would like to see is Ayden walking. We would love that too! We discussed constraint/restrictive therapy and both of them recommended we discuss it with parents within the hemispherectomy community, but they would support it. So for now we hope to only post little victories as Ayden achieves more of his goals in the coming months. We don't have to return to Cleveland until his 2 year post-op appointments in October. Danessa was so curious about things this trip that we are thinking we may try to take her along then perhaps a celebratory trip to Kalahari on the way back will be in order!
We want to thank everyone for keeping us in your prayers this week. They have certainly been answered and we are so happy to be surrounded by so many thoughtful caring friends.
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