Closer to Home

Although the x-ray yesterday morning still did not show improvement they moved Bub out of PICU. His care does not require the PICU anymore and he was happy about the change. He still has his chest tubes, but just like the past few days there is very little to no drainage. We have also been off of oxygen for almost a full day! Our pediatrician wants to get Bub home ASAP. There is a reason for that, Ayden's history tells us that when Ayden stays in the hospital over a week he actually starts to deteriorate sometimes with no explanation at all, it is just him. We were admitted last Saturday, so we hit the over one week mark last night. We have a PICC line so our doctor knows once he has his chest tubes out he needs to be pushed home. He will rest better, eat better, and overall be happier at home. We have handled IVs at home a few times before so that does not concern us. I went home yesterday for a bit to clean, sweep, and feel ready for his arrival. Our hope for today, chest tubes out, more improvement, and talk of an actual discharge date versus "before Christmas". As long as he is having a good day, Gma is coming to sit with him for a bit so Justin and I can finish our Christmas shopping(something we planned to do last Sat.). We thought we had Bub taken care of, but when nurses and other staff ask him about Christmas he tells them he is getting a green tractor?!? So we will be tractor shopping today for sure, he never mentioned this before. 🤷 Yes, he may be spoiled, and that is ok.

So prayers first for all the little ones that are flooding the PICU and peds floor. Prayers for families as they learn to navigate a hospital stay for the first time and at the holidays to boot. Then, we ask for prayers for Ayden to continue to improve. He needs to eat more, be up more, and not go backwards. We want to get the chest tubes out so we ask for comfort through that process. Our goal is still home by Christmas, which may not be on the 25th for our family. It may be celebrated as soon as we get home, he is so afraid he missed it already. Thank you for all the kind notes, cards, and messages. They have all been appreciated. 

Thank you,

 The Hoffmans