What a week!

The past few days have been rough, but today we heard a word we always love to hear..."discharge". We could possibly be on the road tomorrow assuming we have a good night. There are strings attached though, literally. We will meet with home healthcare when we get back to handle his PIC line for at least another week. There was much discussion about the need for inpatient therapy or at least intensive outpatient. Unfortunately, with Ayden being sick the assessments were based on two interactions, once the first day post op and then on Monday for about 30 minutes. My gutt and our hemi friends that have been there say when Ayden is feeling better he will return to baseline. I have won that battle and made sure everyone understands how I felt about our last rehab stay, the therapy was phenomenal, but inpatient side was not good. I have filled next week with appointments between extra therapy sessions with Parkview, a follow up with our local pediatrician, and the orthotist. We are hoping for a peaceful trip home without any sickness. Ayden is still not himself, despite really trying to perk up today. Our infectious disease team cannot rule out an HSV flare up without a spinal tap, but given that it would not change the treatment plan much our neurosurgeon wanted to avoid it. I am very glad as it would be another procedure and Ayden has been through enough right now. He will continue with the Acyclovir and we will have easy access for bloodwork and fluid if needed. Surgery Success? Well, Ayden has not seized so far today so we still have hope as we take the wait and see approach. We want to thank everyone who has helped with sis or errands, but most importantly thank you for prayers! Hope to write from home tomorrow!