We have been home since late Wednesday night and Ayden is adjusting really well. He is back to the bottomless pit he was before; consuming mac n cheese, noodles, and anything he can dip in ketchup like crazy. He wants to feel better than he does, and that can be frustrating and motivating at the same time. He tolerates some time outside, but tires pretty quickly still. We have been excited about his progress as he is taking a few independent steps, but keeping a close eye on near by furniture he can grab if needed. His eyes improve each day and especially look better right after he wakes up from bedtime or nap. We are not too worried about any of it yet.It seems to be more about rebuilding strength from sitting in a bed for almost a month, versus loss of actual function. He will again have OT/PT with his regular therapists on Monday for the first time since his shunt revision and we are anxious to see what they think. They were impressed two weeks ago after his redo, but this time he will be doing less. We left Cleveland with a script for OT/PT 5x/wk for 4 weeks, but no one has that kind of availability around here(yes, one of those times I wish I was back in Indy). Ayden will just continue to go once a week and we can try to pick up open slots at Parkview when they have them available. Fortunately, he is motivated enough to do some of his own therapy like climbing halfway up the stairs on his own today (yes, I was close by just in case). We have not seen any seizures in days, not even any "odd" actions or looks since we left CC. Everything seems to be really well and we truly cannot thank everyone for all the cards, thoughts, and most importantly - the prayers!
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