The update, sorry this is so late!

We met with Dr.Bingaman on Tuesday and he gave us a 50% chance of seizure elimination this time around. In his words he was pessimistic, but understood how this would help eliminate worry about the left over tissue and the possibility of future problems. The surgery on Wednesday went well, and he sounded more optimistic given the tissue that was removed. Ayden had a rough night Wednesday, but started to really perk up yesterday. There was only one problem yesterday, and that was the return of seizures. He has had five clusters so far, fortunately his cluster today was while the Neurologist was in the room. He felt it definitely looked like seizure activity, but reminded us that the brain is still swollen and healing. We are still trying to be optimistic as we move forward. Today has been a very grumpy day for Bub, but on the bright side his drains from his head have been removed and we will be moving to the EMU soon. There was also one big highlight, holding Bubba today was very good for both of us. With his exterior drains removed I was able to hold him and lay next to him in bed. He has been sleeping pretty peacefully since all the commotion of the morning. He has eaten, one bite of waffle and some milk,but it was on his terms without forcing so we'll take it. Another highlight is Infectious Disease has been on board and following in the background, but with no signs of fever or aggitation the HSV no longer has us worried about a flare up. Ayden is back at baseline already and for lack of a better term, sharper than before. We don't see the fog in his eyes and the clusters we have seen have not been as severe as what we have been seeing. Everything has gone very well so far and with us moving out of ICU returning home by next week does not seem unreasonable. A big part of me would love to pick Nessa up from school on Tuesday, but we will see, that may too hopeful! ;)