Waiting...

We met with our neurosurgeon today and he did not see anything that concerned him. Instead, he called our CC neurologist to come and meet with us. After talking with him he set up an admission today. We did not plan on staying the weekend and we shared that, but he really wanted to catch the movements now. He wants to get the episodes on video/eeg to help figure out what we are seeing and then we can figure out why. Unfortunately, the epilepsy unit is full this weekend so we are on a peds floor with a little portable unit. It reminds me of his first VEEG at Parkview years ago. Tonight wasn't bad because they didn't get him hooked up until 9pm so Bub was already exhausted and fell asleep shortly there after. Tomorrow may be rough because unlike the epilepsy unit where the camera can follow you around the room we have to pretty much have him sit in front of the cart. I am hoping he is in the mood for an iPad snuggle day...we'll see.
Positives, the shunt seems to be working properly, Ayden still seems very healthy other than the tired eyes and lack of energy.

We saw 3 episodes before he was hooked up so we hope he will "perform" for the camera tomorrow so we can get home. From there the team will hopefully offer some answers for us after they look at everything, our neurologist also recommended a follow up MRI to keep an eye on things. Thank you all again for your thoughts and prayers.