Thursday, March 20, 2014

Turning Another Direction

I have found that packing for these trips gets harder and harder to do. I think I am just tired, or at least  frustrated at the thought of doing the same things over and over again. It was funny as I approached 80/90 (an hour later than planned) I found myself looking up to see an option to go left or right. One way heads east to Toledo then Cleveland and the other Chicago then Milwaukee. It made me think for a moment about the decision to seek another opinion- to stop turning the same direction so to speak. For a moment it was refreshing and helped keep me going. About 4 hours later, we arrived at Racine for the night. Ayden was quite the trooper motivated by the idea of swimming when we reached the hotel. He was no trouble in the car and even "Found the Pee!" each time we stopped. OK, so the Twizzlers, Chex Mix, and M&Ms might have helped too. I was nervous about staying at a hotel with just Bub, we have traveled together before just the two of us, but not with an overnight stay prior to admission. I was really feeling proud of myself until I went for the rest of our luggage and found myself locked out...Yep, Ayden is tall enough to flip the door lock and made sure to do so when I left appearently. Fortunately, he did listen to mom and unlock it after a minute or so of all sorts of scenerios running through my mind while stood in the hallway. He did get to swim and we ordered pizza. He was very happy with his date night..then the question came, "Mami's house?" I didn't bother to lie because the truth is he already knew. He asked about sis before we left school and really didn't want to leave with me today. He knows, so I told him we have to see the doctor tomorrow and go to the hospital. His reply, "No." :(
I hope tomorrow goes smoothly and he settles in, we will see. The VEEG will be 48-72 hours, and they will introduce another medicine to see if decreases or increases the seizures. Perhaps this time the medicine will work, if not we will go home on another one to try. Ayden has a 24 hours rule with hospitals typically (as in he can turn into a nurse's worst nightmare quickly). We are going to hope for 48 hours, but more importantly we are going to hope for answers and information that can lead us to a solution for the current seizure onset.  I probably won't post again until we are home as the next couple of days will be spent on the unit trying to keep Bubba happy(yes, the iPad is charging as I type this).

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