First things first, seizure control, Ayden has not had any seizure activity since the shunt revision in last June (after his redo last May). We have again, under the care of Dr. Khan, taken him off of his 2nd seizure medication (he is currently only taking one). He is so happy now and is not foggy, cloudy, cranky, or agitated without a reason. He is like a "normal" five year old boy who thinks burps and farts are hilarious! Picking on his sister is still a favorite, but he misses her when she is not around too. He is absolutely in love with dogs, cats, and horses too. A puppy will be arriving soon, we just have to find the right one. I am quite sure the puppy will be worn out before Bubba will be, but we'll see.
School is fun for Ayden now, he has friends and has started to speak up and make decisions for himself. PT and OT are going well and a consultant has been added for his vision. He usually rides the bus in the morning and afternoon, but if he comes to school with me he can behave for a bit too. When school started this year I had to learn to duck around corners or behind doors so Ayden would not see me. He is so happy at school now that I can see him in the hall and say hello without incident. I am so proud of him and I am so glad that he has been healthy enough to ween off the meds that created "the monster". It will take time to lose his reputation for those that have seen him at his worst, but his best is better than ever. Don't get me wrong he is still strong willed and 5 years old...but he wants to succeed. Ayden has craved independence for so long and he is driving his own success now. This past Sunday we tried to take Ayden back to church and he really did ok with the preschool.This was a goal we have had for awhile, and I was excited that sis and I didn't have to go alone. It is amazing how many things we can do now as a family, now it is just a matter of being brave enough to try more. Why is the title of this prognosis, perhaps its the word that makes me the saddest at times. We have had people ask the question so many times,"But what is his prognosis?". The truth is Ayden, like so many others, is unique. We could guess, or speculate, but does it matter? We have a happy kid that loves us and finds joy in simple things...We love him and that is all we need to know right now. The lord has blessed us in so many ways. He has shown us the power of prayer and that miracles come in all sizes, ours is just under 4 feet tall and about 75lbs...His name is Bubba.
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